Online support and information is within reach
Ask the healthcare team about resources and support groups to help stay connected
The following resources are a starting place for accessing more information on living with acute lymphoblastic leukemia (ALL) and lymphoblastic lymphoma (LBL). Keep in mind, this list does not include all available resources and is not meant to replace conversations with the healthcare team. The healthcare team should always be the first source of information and advice.
American Childhood Cancer Organization (ACCO) began in 1970 by a group of parents whose children had been diagnosed with cancer. Today, ACCO is one of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer as well as their families.
Cactus Cancer Society is an innovative nonprofit serving young adult cancer patients, survivors, and caregivers ages 18 to 45 years. They provide a full spectrum of free, innovative online wellness and support programs for young adults facing cancer, enabling them to have access to age-appropriate psychosocial survivorship support they deserve through a medium that fits their lifestyle. All of Cactus Cancer Society's programs and resources are uniquely accessible regardless of a patient’s specific diagnosis, geographic location, financial situation, or inpatient status.
Cancer SurvivorLink™ is a website where childhood cancer survivors can learn about cancer survivorship, store important health documents, and share those documents with their healthcare providers.
Elephants and Tea's mission is to help adolescent and young adult (AYA) patients, survivors, and caregivers know they are not alone in their experience with cancer. They have the only magazine written for and by the AYA cancer community telling their story in their own words. The Elephant in the room is cancer. Tea is the relief conversation provides.
The Leukemia & Lymphoma Society® (LLS) is the world’s largest nonprofit health organization dedicated to curing leukemia, lymphoma, and other blood cancers, funding blood cancer research, and providing education and patient services.
Mattie Miracle Cancer Foundation is dedicated to increasing awareness of childhood cancer, education, advocacy, research, and psychosocial support services to children, their families, and medical personnel.
Produced by St. Jude Children’s Research Hospital, the Together by St. Jude™ online resource provides trusted information to anyone facing childhood and adolescent cancer, regardless of where the patient receives treatment. The website is available in a growing list of languages and offers comprehensive information, practical resources, and shared stories of hope and healing.
Jazz Pharmaceuticals is not responsible for the content included in these resources. The organizations above are independent from Jazz Pharmaceuticals.